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Over the decades numerous people have studied the menstrual cycle in epilepsy. The purpose of this database is to provide an index point for available data that could be used to further knowledge in catamenial epilepsy.


The reality is that over decades and across countries, differences in regulatory approvals make a single repository where you can dowload the data infeasible. However, many of the researchers are able to share some or all of their data provided certain conditions are met. This might be applying for local ethical approval, ensuring the research is limited to only further our understanding of the menstrual cycle and epilepsy, and/or including the original co-investigators in the conduct and publishing of the study. We have collated studies where the investigators are happy to be approached about reuse. Details on the conditions will be summarised in the database.


Each dataset in the index will have key attributes listed with a focus on catamenial epilepsy research, associated resources, and procedures and conditions for reuse of the data. 


If you have a research question related to the menstrual cycle and epilepsy, browse this database to see if the data you need may be available.


If you would like to add your study to this database, get in touch with the consortium leads.

Study ID:

WEPOD

Main Institution:

NYU Langone Health, University of Pittsburgh, Brigham and Women's Health, Northwell Health (LIJ)

Number of Participants with Epilepsy:

89

Summary:

Observational, cohort study of WWE and age-matched healthy controls; goal of the study was to understand pregnancy and fertility outcomes in WWE; to enroll, WWE had to be planning pregnancy and thus off contraception for 6 months; during the study, WWE tracked seizures prior to pregnancy and during pregnancy (if pregnancy occurred) and prior to pregnancy, WWE also tracked menstrual cycles.

More Information:

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